A Compassionate Voice for the Parents of Children with Hidden Disabilities
Melanie Boudreau
  • Blog
  • About
  • Book
  • Relational Guidelines
  • Workshop
  • Contact

Drawing Battle Lines

5/25/2013

1 Comment

 
When my son was in the first grade, his classmates were mostly accepting and his teacher understanding. Yet my son’s vocal and motor tics caused him to find ways to compensate. What does even a young adult do to compensate when accidentally making an aberrant noise in a room full of peers? Some blush, some wish they could go hide in a hole, while others make light by offering a joke about barking spiders or feigning their neighbor’s guilt. I think one has to be at least thirty before possessing the poise and grace to just say “Excuse me” without a second thought! And that’s for just one infraction, not infractions that happen repeatedly, every single day of their lives. 

My son’s school psychologist came to observe in the classroom and witnessed clowning behaviors. The psychologist’s assessment included the judgment that my son was an attention seeker. Really? Exactly the opposite was the truth. Comic behaviors in the midst of tics are to conceal the tics, because the more controlled gross and fine motor movements become for an aging child, the more obvious unwanted movements become. And what’s worse, sometimes the tics themselves can be humiliating. For a painfully prolonged several weeks, my son had a complex motor tic slamming his fist into his groin in a knock out punch. He neither enjoyed this or thought it was funny. He was mortified, humiliated and in pain. He could blush, go hide in a hole, or make light of it, all the while dying a thousand deaths as a school psychologist further assassinates intentions labeling my son as attention seeking. 

These mischaracterizations tempt us as parents to go Mama Bear on our children’s overseers. A level head with aim for advocacy is wiser. I pretend that we are all on the same team, and all believe in my son as much as I do. Visualization is a powerful tool. Loyalties are created through offering grace when communicating how observers are getting it all wrong, terribly wrong, by using face saving heedfulness. There are times this takes as much self discipline as we used when our obstetrician told us “Don’t push!” and we wanted HIM to die a thousand deaths. This is our battle to fight, and when battle lines are drawn, the more warriors you retain on your side of the chalk line, the better. 

1 Comment

    RSS Feed

    Picture

    About Melanie

    Two of our three children have Tourette's Syndrome as well as a few other co-morbidities, inherited neuropsychiatric disorders. I'm still happily married, love life and want to share encouragement bringing hope, humor and insight into the process of raising children who are different. 

    Archives

    February 2022
    November 2021
    October 2021
    September 2021
    July 2021
    June 2021
    February 2021
    January 2021
    December 2020
    November 2020
    October 2020
    September 2020
    July 2020
    June 2020
    April 2020
    March 2020
    February 2020
    November 2019
    July 2019
    March 2019
    February 2019
    November 2018
    July 2018
    December 2017
    September 2017
    July 2017
    February 2017
    December 2016
    August 2016
    May 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    June 2015
    March 2015
    January 2015
    December 2014
    October 2014
    August 2013
    May 2013
    February 2013
    December 2012
    November 2012
    October 2012
    September 2012

    Categories

    All
    504
    Accommodations
    Adhd
    Affliction
    Angels
    Anger
    Anxiety
    Assurance
    Attention Deficit Disorder
    Authority
    Autism
    Beauty
    Behavior
    Book
    Boundaries
    Bullying
    Camaraderie
    Challenges
    Change
    Child
    Children
    Church
    Coaching
    Comfort
    Community
    Courage
    Cuba
    Declaration
    Depression
    Empathy
    Encouragement
    Expectations
    Faith
    Family
    Glory
    Grief
    Healing
    Hidden Disabilities
    Hiking
    Home School
    Hope
    Identity
    Iep
    Intercession
    Internal Dialog
    Intervention
    Intimacy
    Job
    Judgment
    Life
    Local Help
    Loss
    Mainstream
    Mental Health
    Mental Illness
    Miracles
    Mother
    NeedProject.org
    Pain
    Parenting
    Personal Development
    Personal Responsibility
    Perspective
    Podcast
    Prayer
    Psychiatric Hospital
    Raising Childen
    Remaining Calm
    Resources
    Restoration
    School
    Self-diagnosis
    Sensory
    Shame
    Social Media
    Special Education
    Stigma
    Suicide
    Support
    Tourette Syndrome
    Transitions
    Undiagnosed Mental Illness
    Unrighteous Judgments
    Warfare

Powered by Create your own unique website with customizable templates.
Photos from James Cridland, anneh632, Joshua Siniscal Photography, quali-T