A Compassionate Voice for the Parents of Children with Hidden Disabilities
Melanie Boudreau
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Open-Spigot Living

6/25/2020

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I am in the middle of a bathroom remodel project, the kind of vast under-taking that guts a room and slowly rebuilds it into a place of beauty. I contracted out most of the work, like the shower demolition, re-tiling, and custom wood butcher-block counters. But I have professional-level painting skills. 

For days I have sanded cabinets, primed, and painted. Yesterday I finally finished prepping the walls and ceiling and began the arduous task of painting the room. By the time I am ready to clean my equipment and brushes, typically in the middle of the night, I am utterly exhausted. You know how projects go. 

If a quality paintbrush is not cleaned properly, it dries stiff and hard and becomes useless. It takes time to clean it properly. A thorough cleaning requires copious amounts of running water— a stagnant bucket of water will not do. A painter then uses a dual-sided tool; a metal, sharp-pronged comb on one side, paired with a metal brush similar to a barbecue grill brush on the other side. 

I use the metal brush to repetitively scratch the exterior of the paintbrush’s ferrule stroking down the bristles under a running sink facet until the brush looks clean. But a mere squeeze reveals my brush is still full of paint! The efficient way to rid the brush of the paint is to use the sharp prongs of the metal comb to pierce the brush starting at the heel, splaying the bristles, and raking repetitively through the belly and toe of the brush, all the while under the gushing spigot. This method exposes the interior bristles to the cleansing flow until the brush is squeezed and the emerging water runs clear. Last night while rinsing my brushes, I accidentally pierced my finger with the sharp prongs of the cleaning comb, commingling my blood with the freshly flowing water and fading paint. 

​Can you see where I am going with this description? We can be raked and pierced by life’s assaults all day long and not benefit in the slightest. But God has a divine purpose behind the hardships we face in this life. With the spigot running continuously, He restores us during the transformation process if we position ourselves in Him. 

"I cannot have a new room without enduring the chaos and the cleaning."
I want the fruit of my remodeled lavatory, but I do not look forward to the chaos of dismantling existing structures or to cleaning my brushes. I cannot have a new room without enduring the chaos and the cleaning. Our lives are the same way. I want my life and character to be transformed by God, becoming beautiful. But the project is one of demolition and yielding to a thorough cleaning for me to emerge as hoped. 

My life and yours too require copious amounts of free-flowing Water, running constantly, to cleanse the compacted strands of our life stories  — both the washing of the water of the Word and abiding in the Spirit immersed in the River of Life. A bucket of water captured in a quick morning devotion will just not suffice. The flow of His presence must be constant. The more Water, the better! 

And it takes a good piercing under that flow to expose what is hidden. Prayers to abort the process do not yield a life usable in the hands of the Master Painter. Instead, apply more Water and benefit fully from the raking, embracing God's divine purpose and provision. Visualize the brush with each squeeze of the bristles in your Master's hand! 

Drawing blood last night created in my mind’s eye what really has to happen. It is the piercing of Jesus Christ, His blood, His cleansing flow applied to my life that leaves me restored, supple for use. And the bathroom? It is still a work in progress, but it is coming along beautifully!
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Conveying the Right Message

6/11/2020

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​Just like a gifted photographer gets to choose to focus on the petals of the wildflower rather than on the necessary drainage ditch three feet away, as parents we get to choose where we direct attention.
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Our children grow up and carry with them the scars from the words spoken over them. No matter how mindful we are of this, how carefully we choose our words, our soon-to-be adult children will still need Jesus, His perspective and His healing balm for restoration. Even so, we do need to be oh so mindful! 

As parents of children with hidden disabilities, or really as parents of any child, we are not parenting behaviors— we are shepherding little hearts. Empathy and compassion come before correction and instruction. Even now, my 28-year-old is helping me to understand the impact of my own words on her, words I felt at the time needed to be spoken, but words that could have been spoken after recognition and acknowledgment of her very valid feelings. Her inability to process or choose appropriate behaviors at the time did not invalidate her feelings as a child! 

Today a friend mentioned needing to house a family member for a season to relieve his parents from incessant triggering. There can be constant volatility when a teen is struggling with ADHD and perhaps other undiagnosed co-morbidities. The messaging behind “getting him out of the house” will need to be conveyed carefully.

​Just like a gifted photographer gets to choose to focus on the petals of the wildflower rather than on the necessary drainage ditch three feet away, as parents we get to choose where we direct attention. We can highlight what is true in ways our children see their value, despite the challenges they face. 

This boy has needs. His needs can be better accommodated for a season with fewer people around. The reprieve offers more space for his parents to pursue a better understanding of how he can be best accommodated for his future success. The message our children need to hear the loudest trumpets their value, whether as our babies or as the children of God.​

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Not Good Enough

2/26/2020

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Earlier this week I had worked out a deal with a Turkish company to use my photography in a product they manufacture. The arrangement crashed upon discovery that some invisible quality of my photography is not good enough, resolution numbers behind the scenes defining how large my photos can be expanded. I use an iPhone as my camera. That is all I have. It has been enough, until it wasn’t. My inventory of thousands of pictures --  not good enough. 

Not good enough for some invisible, non-rectifiable reason that I do not really understand because it is numbers and math and technology.  Numbers. In the highest reading group, I nearly failed sixth grade over my non-existent math skills. I cheated to get through summer school and progressed on to the seventh grade. I am not proud of that. 

Not good enough reverberated through me today taking an ax swing at old wounds. It is not just my cherished but useless collection of photos, but all the things my heart has dreamed and not seen brought to fruition, including certain yearnings for my adult children, and restorative work in developing nations. Hope deferred, over and over again. Pain.  

Inadequacies lurk beneath my surface— not good enough to make everything all right for those I love. Outcomes I was never meant to control. Things I cannot see or understand this side of the veil. 

Can what God brings to fruition be enough to satisfy me? In truth, I need to find my satisfaction in Christ alone, not in the realization of all I desire. I have seen many well-meaning posts proclaiming, “I am enough!” I am not enough. I am not near enough. What I am however, is beloved, and in God, doors and opportunities open for me well beyond the sum of my strengths, likability, intellect or resources. 

He is enough. In the midst of recognition there are and will always be ways I cannot measure up, things my good heart cannot resolve, today He has reminded me in Him I am everything needed anyway. 

Join me in prayer? 

Father, Jesus, Holy Spirit, 
You alone are worthy, our God of mercy and grace Who invites us into Your inner sanctuary for communion. Open palms before You, we surrender to You once again all outcomes, unresolved crises, all the ways life screams at us about our inadequacies. We declare it is in our weakness Your strength is on full display. Your power is made perfect in our weakness as we yield to You, and draw near in utter dependency. We declare Your grace is sufficient; You are enough, and that is enough for us, in Jesus’ Name.

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Rapids Ahead

7/12/2017

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"The Lord is with you, O valiant warrior."
​- Judges 6:12 (KJV)
Yesterday I kayaked a section of the Savanah River in Augusta, GA. I have zero kayaking skills. Even so, my host graciously indulged me. It's definitely my idea of a good time.

The river is broad and strewn with rocks, and in places there are roars suggestive of waterfalls ahead. My host kayaking behind me assured me otherwise, but even Class 1 rapids can dump a kayak if wedged sideways, or otherwise stuck.

I could feel my stomach tense up, my adrenaline release, and my determination focus as I led our path through uncertain waters.

The Father's Assurance in the Midst of Challenges

The moment I emerged into the calm, my phone rang.

​I took a deep breath of relief with risk behind me, and answered.

On the line was one of the heavy hitters I took with me last month for Kingdom expansion pioneering work in North Borneo. She related that God spoke my name to her, and directed her to call me with an immediate message:

"I see you as the trophy. You are victorious. You are fully capable. You are well equipped. You are a leader. He is so pleased with you. Again, you are the trophy...you are His champion."

I was stunned. Timing is everything.

Then last night, as I'm sharing with my host my vision for founding a non-profit to bring autism intervention to developing nations, discussing setting up the board, the same feeling hit my stomach: rapids ahead, uncertainty, a mission seemingly without the skill set, but determination.

Immediately the affirming word returned, "His trophy, His champion, victorious, capable, equipped". His word had imprinted, and now is triggered with the internal feeling I get when approaching rapids in a kayak.


I thought of Gideon threshing his wheat while hiding from his enemies in a vat. God addressed him as "O valiant warrior!" And truly he was.

What rapids are you approaching that turn your stomach a bit, that threaten to tumble you upon the rocks?

​Listen intently for the affirmation God is poised to speak into your spirit at that very moment, to imprint upon you that indeed, you've got this. He is with you with every thrust of your oar.
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    About Melanie

    Two of our three children have Tourette's Syndrome as well as a few other co-morbidities, inherited neuropsychiatric disorders. I'm still happily married, love life and want to share encouragement bringing hope, humor and insight into the process of raising children who are different. 

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Photos from James Cridland, anneh632, Joshua Siniscal Photography, quali-T