A Compassionate Voice for the Parents of Children with Hidden Disabilities
Melanie Boudreau
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An Open Letter to the Church

1/16/2016

2 Comments

 
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"Dealing with the judgment [from the church] was almost as hard as dealing with my son!"
- Mother of a child with a diagnosis


Once again I had a conversation with a mother of a child with a diagnosis. Her son is now a young adult, and wants nothing to do with the church. He has hidden disabilities and was considered a behavioral nightmare throughout his childhood years.

Predictably, his mother shared how she is still dealing with the vestiges of bitterness left over from fielding the judgments of her peers and leaders from church... judgements against her son, and judgements against her parenting.

"Dealing with the judgment was almost as hard as dealing with my son!"

It's true. I experienced the same dynamic during those difficult years. It's a lament shared by many parents raising children with hidden disabilities.

Dear Church, Remember These Truths

​I want to remind the church of a few truths.

Christ died for us while we were sinners. (Romans 5:8) It's easy to have vision for "good people" to come to Christ. But the truth is, God doesn't just come for really nice, well adjusted people. He came for all of us, even those of us who are dreadfully broken, and emotionally unhealthy, and egads, even those of us who may parent poorly. So even if every single negative assumption you have made about my parenting is true, I am the object of God's attention, affection, compassion and love. As such, I should be yours too.

Christ Himself, the One who never sinned, didn't come into the world to condemn it. He came so that through Him, the world might be saved. (John 3:17) The focus is on offering a nail scarred hand up. Jesus came to destroy the works of the enemy, and you share Christ's mandate. (1 John 3:8)

Among other things the works of the enemy include marginalization, exclusion, the voice of accusation, diminishment and demoralization sown into the lives of entire families coping with hidden disabilities.

How will you serve to offer a hand up and destroy the works of the enemy?
2 Comments
Tourette Tales link
1/17/2016 10:54:15 am

What a shame that the church alienated in this way. Our church have been nothing but kind and supportive even during George's most outrageous meltdowns, we have always been made to feel welcome however George is behaving, they put extra leaders in place so he can take part in all the holiday clubs too.

Reply
Melanie
1/17/2016 11:47:39 am

I'm so glad to hear you have found a wonderful place to fellowship! I want to believe more and more houses of worship are moving towards inclusion. Our experience has been a mixed bag. The "hidden" aspect of the disabilities is where we ran into the most problems.

For example, my daughter finally made a friend in a church we had attended for 3 years, but the boy's mom shut it down fast questioning my daughter's motives because she was post pubescent and he wasn't. I cried for days over her mama bear motivated cruelty in the way she slammed my vulnerable daughter. Why hadn't the mom sought me out first? Assumptions were made.

My daughter was judged rebellious for her noise canceling headphones worn during service, an accommodation needed due to sensory sensitivity. Mothers judged me for "permissively" allowing it. It's better when everyone knows the child has a disability, but our older children prefer discretion.

There were many affronts we fielded during that season, with kindness coming most often only after I was able to advocate and disclose the disability. But therein lies the problem.

Must congregants know the "why" before grace is offered? I hope to help readers explore this question.

The church is God's plan A. We are representatives of His love and grace to a lost world. Anyone can be accommodating after discovering a disability, but may the love of God motivate and empower us to be so without revelation of underlying causes.

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    About Melanie

    Two of our three children have Tourette's Syndrome as well as a few other co-morbidities, inherited neuropsychiatric disorders. I'm still happily married, love life and want to share encouragement bringing hope, humor and insight into the process of raising children who are different. 

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