A Compassionate Voice for the Parents of Children with Hidden Disabilities
Melanie Boudreau
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What You Do Not Know

12/6/2014

4 Comments

 
Today was a tough morning for my daughter. She is 23 and working her first real job. Although she has an IQ of any Harvard grad, we are grateful for her job within walking distance at the little convenience store by our home. 

They are understaffed and have no idea the stress she is under working 40+ hours a week. Exhaustion exacerbates her tics, and this morning her fist slammed into her thigh repeatedly, a cruel tic that leaves her legs aching, the same legs she must stand on continuously for 8 hour shifts. I wasn't sure she would make it to work. We could hear her sobs through the door, and her rare screaming tic acting up. 

My heart was breaking for her. She is terrified of being "found out", of having her life crash like stacked cans upset by a shopping cart. She told her boss about Tourette's when she was hired, but the look on her boss's face spoke volumes about the discretion needed. My daughter downplayed the severity of the tics, and omitted the part about debilitating depression and crippling anxiety. It's taken long enough to get a job, and she's been burned before. 

Tonight, valiantly, she is there, at work.  Her expressed goal is to ensure that every customer leaves the store with a smile on his or her face. She is a delight, and not a shopping soul knows of her internal pain. 

Remember my daughter at the check out this holiday season, because she is not the only one with hidden pain. May we purpose to put a smile on the face of every retail employee, no matter how hurried or pressured we ourselves feel. 

4 Comments
Brian D
12/13/2014 11:26:29 am

My family and I will pray for you and good for her for sticking with it.. You guys are a great family and often times a good base is all it takes to make it through (at least, that's what I am telling myself this season)..

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Melanie link
12/13/2014 01:37:02 pm

Thank you! I am proud of my daughter and her devotion to excellence, no matter how challenging her day. A solid foundation goes a long way. May you enjoy those things that really matter this season like love, laughter and family...and decide in advance that those pieces that are not ideal really don't matter.

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Jay Cookingham link
12/15/2014 11:36:54 pm

Your daughter is such a courageous soul...i remember both of your girls when they were small and I made a rare visit to CO....they both ran up to me and jumped in my arms like I was a lifelong friend. I will never forget that! Praying for her as she bravely embraces life.

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Melanie link
12/16/2014 01:08:08 am

Thank you, Jay. They loved you instantly because I love you! That makes you "family". :) Hugs to your entire family.

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    About Melanie

    Two of our three children have Tourette's Syndrome as well as a few other co-morbidities, inherited neuropsychiatric disorders. I'm still happily married, love life and want to share encouragement bringing hope, humor and insight into the process of raising children who are different. 

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