A Compassionate Voice for the Parents of Children with Hidden Disabilities
Melanie Boudreau
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It's Not about the Floor

9/28/2012

8 Comments

 
There was a time when I had two wee little girls. The eldest was perceptive, bright and very discerning. She decided what she wanted to do by weighing her options. The other was very much a free spirit, and unnervingly brilliant. She would laugh uproariously one second, and fly into a blind rage the next. There was a purity about her transparency of heart, warmth and genuine innate generosity that was irresistible. If my eldest took her crayons and colored the white linoleum squares of the kitchen floor, she would have decided that although retribution was guaranteed, the chosen canvas was ideal for her palette, overriding the voice of conscience. Not so with the other child. My littlest one would color her paper on the kitchen floor with obedient intentionality when noticing a stray scribble off the sheet and become enthralled at the beauty captured on this pristine surface. Going with the creative flow, perhaps ten squares might be fully covered in rainbows and flowers prior to the revelation of horror to hit her of what she had just done. Aghast, she would stand over her art in utter disbelief that she had so brazenly violated the sacred rule, “NO COLORING ON THE WALLS OR FLOOR!” 

So what’s fair? Both clearly broke a cardinal rule. My first born needed to understand authority and obedience. My younger child needed to understand impulse control, a completely different lesson. A mother’s intuition discerns the difference, but a child’s observation of differing consequences can build bitterness with the perception of disparate treatment. It’s tempting as a parent to even things out to appeal to the simplicity of fairness. Don’t do it. The goal is not to parent the behavior, but instead, parent the heart. It was never really about the floor. 

8 Comments

Best for Whom? 

9/28/2012

3 Comments

 
I’ve been there. I was convinced that my daughter needed to be home-schooled. She struggled with extreme volatility, excessive obsessive behaviors, sensory issues and incontinence as well as lacking the emotional maturity of her peers by several years. Additionally, although only in the second grade, she was already decoding words on an eleventh grade level cracking jokes with the sophistication of a young adult. She was horribly vulnerable, completely oblivious to the impact her behaviors had on others. She internalized the messages from the scowling faces not in light of her rages, but instead as a reflection of her own lack of worth or like-ability. I knew this, and hated myself for failing. I was about to mainstream her in our neighborhood school. 

What does failure look like for a Type A mother?  Anything that falls short of “the ideal”. The ideal was home-schooling. I had already home-schooled her for half of kindergarten, all of first grade, and now half of second. Meanwhile, I had a new baby, lived in a new town with next to no friends, and could not attend church functions or social events to create them. After all, who can babysit a newborn and a screaming volatile child at the same time? 

I made the right choice. I put her in school. I didn’t do it for her. I did it for my mental health. I did it for my other daughter with whom I continued to homeschool and build relationship for the next 5 years. I did it for my son. I did it for my husband. And it was the hardest thing I had ever done because it wasn’t what was best for her and I loved her just as desperately as I loved all the others. But it was right, and the Idol of Ideal came crashing down. 

3 Comments

Time to Get a Clue!

9/27/2012

1 Comment

 
I'm a Christian. Please don't hear that I am culturally part of the Judeo-Christian mindset adhering to standards of religious ethics. Rather, I am a passionate follower of Jesus Christ cultivating a reciprocal dynamic in relationship with the Most High God through the sacrifice and resurrection of His Son.  As such, I attend church and fellowship with others who do also. THAT I am much less passionate about. The problem with the church is that it is full of people, real live people who sometimes spiritualize their ignorance into dogma. A friend posted this short sermon on Facebook recently, and I couldn't help but contrast it against an article posted a few days earlier discounting ADHD as well as all mental health disorders as a ploy by pharmaceutical companies and unscrupulous doctors who desire to drug our children and reap the profits, preying on our gullibility. The article was scarfed up by well meaning church members and reposted as authoritative, after all, it ECHOS what is being taught either consciously or unconsciously in our churches: Failing mental health is a character defect, not a legitimate physiological medical condition. Christians moralize it, and scorn treatment.  I love this man's willingness to SAY what no one else in the church is saying. 

No, I do not suffer from depression. But my children have wrestled with it in its ugliest form. As parents, we cannot buy into the lie, no matter where it is espoused, that any condition not measurable via venipuncture lacks credibility. 
Published on May 8, 2012 by dallasseminary

Pastor Tommy Nelson, Senior Pastor of Denton Bible Church, shares his experience of depression.

1 Comment

"You want to DRUG your child??"

9/26/2012

3 Comments

 
I remember those days when I had to bridle my response to overt crass judgment against my most sacred call: to parent my children. The asking of that question uncovers a belief that 1) My child raising skills are nonexistent. 2) I’m too lazy to exert the effort necessary to train my children. 3) In response, my shallowness and poor character entice me to drug my children as a poor substitute for parenting. After all, my children aren’t like YOURS.

That’s right. My children aren’t like yours, and I have come to understand that your judgment is a poorer reflection on you than it could ever be on me. Parenting MY children takes 500 of my loving, consistent corrections for my child to make the connection, whereas your child needs only 3. My child has brain chemistry challenges and yours does not. As much as you loathe my child’s behavior, my child loathes him or herself all that much more.

My purpose in writing is to bring hope, humor and insight into the process of raising children who are different, necessitating that the parents also be different. I’m very different, more different than I would have ever been without the gift of my challenging children. I just might have thought that my children turned out so great because I did it right. Now, I know better. My children are so great because of who they are.
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    About Melanie

    Two of our three children have Tourette's Syndrome as well as a few other co-morbidities, inherited neuropsychiatric disorders. I'm still happily married, love life and want to share encouragement bringing hope, humor and insight into the process of raising children who are different. 

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